Kyle's Kamp was created in 2010 after our lives changed forever. Kyle was diagnosed with Leukemia on October 6th, 2010. It started as a web-site that we created while in the Hospital to update friends and family. It has grown into so much more...
Can your child go with ONE less gift this Holiday season? If so, please talk to them and consider donating $10, $20, $50 or more to pediatric cancer care and research thru the Children's National Medical Center. All funds go directly to the Children's Hospital Foundation in support of pediatric cancer research. The Holiday season is all about giving! Teach your kids a great life lesson.
We are putting the final touches on the Inaugural Gavin Rupp Open in October. This will be an Annual Event that will raise money for the Kyle's Kamp cause in honor of Gavin Rupp.
We will be looking for a Tournament Title Sponsor, Hole Sponsors and other various sponsors in the coming weeks so please consider being a part of this event in honor of a very special young man.
Gavin- May 2013 in KK Event at Nats Park
Please take the time to watch the video below. Incredible shots of Gavin can be found at the following time stamps: :12 / 1:29 / 1:41 / 1:56 / 1:59 / 2:18
As we go through this journey in support of the Rupp family we would ask you to keep in mind that it may be just as tough 2 weeks, 6 weeks or 6 months down the road for the Rupp family. Let's all figure out ways to support the entire family with a special focus on Ian and Abby.
We will certainly continue to honor Gavin by raising awareness and money in his name (Golf Tourney in October, the Race for Every Child with Team Gavin on 10/5, the KK Tourney in 2014 and more).
Gavin- Thank you for the positive impact you had on all of us. You made all of us better people and for that we are eternally grateful. You will live in our hearts forever!
Bryce wearing #15 on his wristband today to honor Gavin.
A View from behind Home Plate- GAVIN RUPP
Wednesday, July 31, 2013 / Jennifer Skinner
Dear Gavin . . . I didn't even know you, buddy. And there are so many young children who have fought this disease. A number that is unbearable. So why is it you, Gavin, who has pierced my now broken heart? Is it because I'm a mom of three boys? A mom of three baseball players? A mom of two who have been mine for fourteen and twelve years - bookends to your thirteen? Is it just that I am a woman who considered her faith strong and yet found that each time she saw your face on the computer screen, her eyes blurred and spilled tears, all the while looking up and questioning God?
We waited for the miracle and we prayed so very fervently for it. I saw you in my mind and felt you in my heart, a prayer for you and your family on my lips countless times a day. And as soon as the prayer for the miracle floated up to Him, in the very next breath I asked Him to help us if the miracle we wanted didn't come. I begged Him to never let go of your parents, of your sister and brother, of your friends and of those, like me, who never had the privilege to meet you. I asked Him to please not let the anger and sorrow take over and break our faith today. I asked Him to let us wake up on this morning with that faith upright, strong, steady and firm. I asked Him to help us believe that even on this day when it is absolutely unfathomable to our human minds, that there just might be a miracle here somewhere in the midst of dust so thick with pain that we are blind to see it.
Because I know that I have been told that God will make beautiful things out of the dust. And I gotta say, if I was your mother and someone told me today that there was reason, purpose, beauty to come out ofthis? Honestly, I just might scratch someone's eyes out. This?This sorrow, this tragedy, this confusion? Thisis too dark. Still I make myself go to my Bible and read the words in black and white right in front of me: faith is the assurance of things hoped for and a conviction in things unseen. And since I prayed for eyes to see, I better keep searching for a long, long time for what beauty might come out of these ashes.
And the thing is Gavin, that even though I am blinded today, there are a few things that I know for sure about this summer. My summers are always full of baseball, and this one was, too, but it was oh, so very different.
It was a summer, that because of you, I spent countless moments talking to God while I sat in the bleachers, not only about hits, strikes, and diving catches, but about courage, compassion and awareness.
It was a summer, that because of you, as I watched my sons grip baseball bats or slide into bases, I gave thanks, not only for their successes, but for their fingers and their hair and their little noses and their every breathing moment.
It is the summer that because of you, I left unironed clothes in a wrinkled mess in the laundry basket and sat down with my 8 year old to watch that show with that annoying, talking dog whose voice gives me an eye twitch.
It is the summer that because of you, I lay in bed with them and read aloud even though they all know how to read on their own.
It is the summer that because of you, I ran farther and farther, each mile bargaining with God . . . if I do one extra mile, maybe the miracle could come? Even though I knew much better, I still played the game and I ran a bit farther because of you.
It is the summer that because of you, little boys so singularly focused on base hits and strike outs and wins, found that though they were little they could do big things with big love that eclipsed just a number on a scoreboard.
It is the summer that I had the honor to speak to your dad and to marvel that he could even put one foot in front of the other, much less demonstrate an astounding strength that I will never forget. I was able to see that his eyes shown with purpose - a purpose beyond his own pain.
It is the summer that because of you, whenever I see the color orange, whether it be my child's flaming orange hair, the burning flicker of a candle, the bursting glow of the sunset or even the neon orange of a traffic cone, I will forever see your face and send up a prayer for your family.
It is the summer that because of you, I have decided to work very hard to keep my faith tethered to me even in spite of the inexplicable, crushing loss of a boy so very much like my own three.
This morning, on this day, the test of a faith begins and I'm not sure I am equipped for it, but I know in the very deepest part of me that He is equipped. I know that my faith will remain, not because of my strength and my will to hold on, but because our God is too strong, too powerful and too faithful to let me go. And right about now, on this morning, I'm pretty sure you know that very well, huh, kiddo?
So Gavin, though I never met you, I will never ever forget you. I will never, ever stop praying for your family and friends and for all the children who will follow you into battle against cancer.
Because of you, I will not allow my life to remain unchanged. I will try to remember that this summer, a small boy's life brought extraordinary lessons and also brought little changes in the life of this ordinary woman. Little changes that might just add up to beautiful things in a life unfinished. And I know that I won't be perfect. I will become impatient and will not be grateful enough and I will let mundane annoyances get to me. But because of you, I am hopeful, that on the days when I feel like everything is ash and dust, I will look hard for beauty. When I feel like I am ash and dust, I will try hard to be beauty. I will try very, very hard tobe beautiful . . . to be beautiful, like you.
Rest in peace, Gavin. You will be forever loved.
WASHINGTON POST ARTICLE Baseball has helped sustain Gavin Rupp since his cancer first formed, back in February 2011. Gavin received radiation treatment and visited Children’s National Medical Center and twice underwent surgery to remove a glioblastoma tumor from his brain. He went through hell, and he still kept his starting position on his travel team. Gavin played shortstop.
Last month Gavin’s father, Chris Rupp, had to make sense of a collection of unfathomable phrases. The doctors were telling them there was another tumor. It was at the center of Gavin’s brain. The surgery risk was too high. There were no options. “The doctors and our team at Children’s National kind of told us it was time to start moving to hospice,” Chris Rupp said. Chris needed to tell his 13-year-old all of this.
The Rupps of Ashburn have had too many bad days. Friday was a good day. TheNationals invited Gavin to throw out the first pitch before the team played the San Diego Padres. Late in the afternoon, at around 5:15, they were hanging out together in the Nationals dugout, Gavin’s parents and his siblings, Abby and Ian. Gavin’s favorite player came walking out.
The group stood off to the side as the Padres started taking batting practice. An hour later, up until about 45 minutes to first pitch, Harper was still there talking to Gavin and his family. Kyle Mann, the Nationals coordinator of community relations, had never seen a player spend so much time with a kid before a game.
The Nationals knew Gavin’s story because the Rupps had become involved in Kyle’s Kamp, a foundation that raises money to support Children’s National for pediatric cancer research. One way Kyle’s Kamp raises money is a series of youth baseball tournaments. Local teams raise money to play, and because the Nationals sponsor Kyle’s Kamp, the final two games are played at Nationals Park. This year, the tournament raised $370,000.
On May 19, Gavin’s team played at Nationals Park. Gavin pitched the first inning, went 2 for 3 and scored the first run. It was the last game he played.
After the recent diagnosis, Kyle’s Kamp founder Rob Hahne called Mann. Mann invited the Rupps to come to a game. He told Gavin could throw out the first pitch, and maybe he could meet his favorite player.
When Mann asked Harper if he could meet Gavin, Harper did not hesitate. On the field, he gave Gavin the hat off his head and signed it for him. After a while, Gavin sat down in the air-conditioned tunnel between the dugout and clubhouse.
Because of where his tumor is located in his brain, Gavin has lost control of the muscles in his face. “If you ask him something, he’ll be happy, but you can’t see it,” Rupp said. “The nonverbal communication isn’t there. I was kind of telling Bryce that. I said, ‘When you talk to him, even though inside he’s happy, you don’t visually see it.’ So it’s kind of hard to have a conversation with somebody.”
Harper asked questions to draw Gavin out. Gavin sat in a folding chair in the Nationals dugout. Harper leaned forward and his elbow on his left knee so his eyes would be at the same level as Gavin’s.
The conversation meandered from topic to topic. They talked about Harper’s pregame routine. Gavin asked Harper about his favorite ballpark to play in, his most memorable home run, his hardest pitcher to hit off of. Gavin loves Ohio State football, and Harper’s girlfriend just transferred there, and they talked about that. They talked about Las Vegas, Harper’s home town. Harper’s father grew up rooting for the Reds, and Gavin likes them almost as much as the Nationals, and they talked about that.
Harper traded one of his wristbands for one of Gavin’s neon wristbands. Harper asked Gavin to sign a baseball for him. They hung out for an hour.
“I can’t say enough. A guy who is 20 years old, to take that much time,” Chris Rupp said. His voice quivered and his eyes watered. “When I was 20 years old, I didn’t have that maturity, to do what he just did.”
Harper eventually had to prepare for the game. The Nationals upgraded the family’s tickets to the suites behind home plate and invited them to come back next year.
A few minutes before 7, Gavin walked on the field to throw out the first pitch. His dad had warned him against throwing from the mound, that maybe he would not be strong enough to throw 60 feet, 6 inches. Gavin stood on the rubber. Behind home plate, Harper crouched and caught the pitch in the air. Chris Rupp stood on the dirt by the Nationals dugout, holding up a camera.
“This was an incredible day,” Chris Rupp said. “We had to tell Gavin there were no more options. He’s going to die. That was hard. You take that day, and then follow it up with a day like today, it means the world. You’ll do anything for your kids. There’s only so much you can do as a parent. For Bryce to do what he did, you can’t put a price tag on this. You just can’t do it. For Gavin to have this honor, it’s like of those days that just doesn’t get any better.”
For more information about Kyle’s Kamp or to make a donation, click this link.
Here is another article from MLB.com- http://washington.nationals.mlb.com/news/article.jsp?ymd=20130705&content_id=52807226&vkey=news_was&c_id=was
You are invited to view photographs from my "Kyle's Kamp 2013 @ National's Park ~ 05/19/2013" group. If you provide the following link via email, FB or on your website, your players and guests will be able to log in to view/download the images they wish to have:http://CarlyGlazierPhotography.zenfolio.com/cnmckyleskamp2013gallery. There is no password needed to sign in ~ one can simply use their email address. To download the images, they will need to enter the password, which is: KYLE. Thank you in advance for providing photo credit to Carly Glazier Photography for any images used in print and or social/web media. I will also provide a DVD of images to CNMC and Kyle's Kamp so you have easier access to them for use in the future.
If you have any trouble accessing or downloading the images, please do not hesitate to contact me. It was a real pleasure to capture such an amazing event for the second year in a row ~ thanks for allowing me (and my wonderful co-shooters) the honor of doing so.
Kyle's Kamp has raised over $500,000 since 2011 for pediatric cancer research and care at the Children's National Medical Center. It started with a small tournament over Memorial Day weekend in 2011. It grew to the 2012 Washington Nationals Memorial Day Baseball Tournament in 2012 with 150+ teams with games at Nationals Park. Other events include High School Diamond Dreams Games, a Casino Night and a Golf Tournament.
HELP MAKE A DIFFERENCE Go to the Get Involved / Making a Difference pages under the More... tab at the top right of the page.
* Net proceeds from Kyle's Kamp 2013 will directly help children in their fight to survive cancer. For every gift, 80% will be invested in research for new diagnostic tools and therapies in oncology and 20% will be used to support patients during treatment giving them access to medications, transportation, meals and other basic needs.
Hope to see you at the 2014 KK Casino Night on March 15th!